It's been a long day. Maia has still not awakened. So many doctors in and out. ICU specialist, neurology, neurosurgery, infectious disease, dermatology, etc. We were told this morning that we should start noticing gradual improvment beginning today and over the next 24-48 hours, although there has been no change so far.
They are narrowing down the bacteria in her spinal fluid and will adjust the antibiotic accordingly. Because Maia's veins are so poor, it has been impossible to draw any blood. Watching the team attempt to stick my sweet girl has been incredibly difficult. She does respond to painful stimulus and the IV sticks definitely are painful. One of Maia's nurses, Kate, talked to me about asking for a PICC (peripherally inserted long term catheter) and I said ABSOLUTELY. The physicians agreed and Maia got this placed late this afternoon.
It's about 8:30pm and we are waiting for an ultrasound of the abdomen. The infectious disease docs want to make sure that there are no abcesses in her belly that might be the cause of the infection. Maia has not been as responsive this evening as earlier in the afternoon. I guess that sounds strange given that I said she hadn't awakened. Earlier today, she was having periods of restlessness and moaning. This evening, she really hasn't had much. I decided to come her hair because it was in huge knots. Maia HATES having her hair combed so I figured if anything would wake her up, this would be it. She did act like she was not enjoying what I was doing so I know that our sweet girl was aware even if she couldn't respond.
On the positive side, Maia's vital signs (blood pressure, pulse, temperature, etc) have been stable. She has not required any oxygen since last night. Urine output has been normal. We don't know how her white blood count is because of not being able to draw any blood. I'm not sure if the lab people will come back tonight now that we have the PICC line in or if they will wait until tomorrow.
Mark brought Matthew up for a little while this evening. He was curious about why Maia was sleeping, but otherwise pretty happy to play with the gift bag that the child life specialist had made for him. It's hard... I feel torn between wanting to keep his routine normal and wanting to be here with Maia. Matthew stayed with Nana and Papa last night and today. He and Mark went home tonight. Tomorrow is his pre-school "graduation" so Mark will stay with Maia while I go to that.
Thank you to all who have been praying for our girl. We have felt your prayers holding us up. Please continue to pray that Maia will wake up soon. God knows the exact minute that this will happen. He knew yesterday's events, He knows today's events, and He knows every detail of Maia's future. He is faithful and His will is perfect. "And we know that in all things God works for the good of those who love him, who
have been called according to his purpose." Romans 8:28
God has a purpose for Maia's life and His strength is made perfect in our weaknesses.