The infectious disease team gave me some reassurance this morning. They said we did the right things since Maia's shunt revision in February: bringing her in for evaluation repeatedly, monitoring her infection, trying to clean her scalp wounds. I've wondered if I should have been more aggressive about the low grade fever that she has run since then. The consultant (head MD) did say that because we catheterize Maia at home, she will always have bacteria in her urine. So, assuming that a UTI is the cause of a fever is not necessarily the best thing. Although there are risks associated with tapping her shunt, it may be appropriate at times. Antibiotics will continue for 24 hours after surgery, but nothing will be needed for long term therapy.
Maia slept well last night once she finally settled down (with some Ativan). She was out from about 10:15pm until 5:45am. Not a usual night's sleep for her, but enough so that she is pretty happy this morning. Thankful for that.
Will keep you posted as we hear anything. The plan is that she will come back to the ICU for at least another day to ensure she is stable post-operatively.
Thank you for your ongoing prayers and encouragement. They mean so much to us!