Fall 2013

Fall 2013

Wednesday, May 23, 2012

The latest

Maia's head CT did not show anything concerning which is good news. She received Ativan at around 3pm and has been out like a light since then. Probably good because she did not sleep last night and I'm sure that all the screaming wiped her out. So perhaps the screaming was a combination of discomfort, lack of sleep, and frustration.

While I was gone, Dr. B (neurosurgeon) came in. He told Mark that he is optimistic that Maia will eventually recover from this horrible infection. In his words, it will likely take "months," which is hard for me to hear. I want my sweet girl to be back to her usual self NOW! Someone reminded me today that God is present even in "the wait" and I have to remember that miracles are sometimes found in the small details and every day things. Anyway... immediate plan is for the internal shunt to be replaced next Wednesday if all goes well between now and then.

We haven't had any more interaction with Maia since last night. This morning, the neurologist told me that it may be several days before we see any progress. Her body and brain need rest to heal more than anything.

I'll write a more complete update tomorrow morning, but I am going to take the rest of the evening to just rest. Mark did send me for a massage. I felt very selfish doing that, but it was good to leave the hospital for a little while. I was able to come back feeling less overwhelmed and discouraged. We are going to tag team tonight. I am going to use one of the sleeper rooms while Mark stays with Maia, then we'll swap later.

Thank you for continuing to lift our precious Maia (and our whole family) up before our heavenly Father. We are so thankful for your support and encouragement at this difficult time.

"I believe in the sun,
even when it is not shining.
I believe in love,
even when I don't feel it.
I believe in God,
even when there is silence."
-Words scratched on the walls of a cellar in Cologne, Germany
by a Jew hiding from Nazi persecution.


5 comments:

  1. Thoughts and prayers continue... PLEASE remain patient.... PLEASE keep the faith... PLEASE know that we ALL continue to ask God to heal your little angel!!! Remember... God IS Great and Prayers ARE Powerful! ALSO remember... the sun is ALWAYS above us EVERY DAY, but sometimes we must look ABOVE the clouds to see it! Love, Brad

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  2. I'm not an adoptive mom; I'm a grandmother of 7. But, I saw the urgent call for prayer on the blog Julia's blog and began praying for Maia. I am so glad Melanie is getting some rest tonight and has had a short break for a massage. I am so glad to hear that Maia is resting too, and even being up all night, maybe Mark will also get a little rest. Her parents need strength for the long-haul and getting a break isn't selfish; it helps you to stay healthy for their child.
    Father, may Maia have quick resolution of this illness. May she be completely free of any sequelae from this event; may she rise up strong and free from pain. May she grow up healthy and have long life, rejoicing in the Lord. Please comfort her parents and brother and surround them with your peace that passes all understanding. We pray this in the Name of Jesus Christ Our Lord and Savior and say AMEN along with her parents and all others who continue to intercede for Maia. ~ Tharen

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  3. Hoping you and Mark each got some real sleep over the night while Maia was resting. Everyone tells you as a caregiver you need to take care of yourself or you cannot care for your child/patient. Your brain knows that...but oh your heart! The path you are taking now is so difficult. As parents, whether we should or not, we tend to look to the development markers our children attain. This situation has no prescribed markers and as you mentioned on an earlier post, has had steps backward as well as forward. Here is where faith steps in. I pray that you can rejoice in the positive changes and be strong through the difficult times. I pray that Maia will be comfortable during her healing. I believe she will be healed!

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  4. Mark and Melanie, we are here for you guys even though we are so far away. Praying for you all.

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  5. Hi Mark & Melanie...my daughter Natalie was in Matthew's preschool class this year. I found your blog via a post on facebook asking for prayers. We will be praying for your family, and especially for God's healing for sweet Maia.

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