And speaking of therapy, the PT and OT are both also happy with how Maia is progressing. So pleased in fact that they are decreasing the frequency of her therapy to twice/weekly. I have mixed feelings about this. They reassured Mark that it is because they can see that we are working with her at home and know that it is making a difference. They don't feel that seeing her one time less a week will make a difference. I'm glad they are happy with how well she is doing. Mark reminds me that they are looking at things from a much different perspective than we are. Amy (OT) and Linda (PT) are seeing where Maia was a month ago and making comparisons based on that. A month ago, she was just starting to push herself up from a lying to sitting position. The feeding tube came out one month ago today. Maia was still having agitation, anxiety, vomiting. We didn't realize that she would need repositioning of her shunt again one month ago. And that's the perspective they are looking at. Mark and I are looking at where she is today compared with where she was 2 months ago today. And two months ago today was Mother's Day. Maia was running around, playing with cousins, charming other relatives, her sweet self.
Anyway... from our perspective, it's sometimes hard to get excited about how she is progressing. We want her back to her pre-illness self and we want it now. Not impatient or anything - lol! So, we are learning to readjust our perspectives and thank God for the gains Maia is making.
- She is able to take a few steps now with me just holding one hand and does well walking when both hands are held.
- The abnormal movements have decreased (although they are still present to some extent).
- Maia is showing more comprehension of the world around her and tracking more.
- She is starting to reach out and touch items. I just bought her a "discovery" ball that sings the ABC's when it is rolled. She seems to really like that and is able to turn it a bit.
- Is tolerating regular foods.
- Laid quietly in bed tonight after story and prayers - making eye contact with me and occasionally smiling. Oh, those were precious minutes.