Fall 2013

Fall 2013

Tuesday, June 26, 2012

We are home!

Six weeks ago today, Maia left our house via ambulance. We had no idea how sick she was at that time. Our sweet warrior girl fought for her life. You, our amazing prayer warriors, stormed heaven for Maia's life and our family! You have uplifted and sustained us in this journey that God has chosen for us. And we are so thankful for you. Today, Maia came home. Yes, life looks a lot different than it did six weeks and one day ago. But, Maia is alive and she is full of smiles as you can see. I'm not sure if she recognized the house when we pulled in the driveway. When we got in the house and set her down on the floor, Maia started jabbering and kept going for a couple of hours. She was NOT interested in a nap. Ate a decent dinner (thanks Linda - it was wonderful!) - no vomiting! Was still wound up at bedtime - it took a long time to get her calmed down enough to sleep. Probably didn't help that we were not able to get the Melatonin syrup she had been taking in the hospital. Hopefully, we can pick it up tomorrow. But no matter.... we are HOME!

Pulling in the driveway

Love that face!!

PJs on and ready for bed, but NOT sleepy!

The only thing missed tonight was Matthew. He is at Nana and Papa's. We just didn't want him to feel left out as we were trying to figure out how to accomplish those routine care needs for Maia at home. But, I have to say that my heart was sad he wasn't here. He will be home tomorrow or Thursday. I know it will be so good for Maia to have Matthew here with her. And I will be happy, too!!

I'll post more tomorrow, but please continue to pray for the transition home. I admit, I'm feeling a bit lot overwhelmed and stressed. Nothing specific, just wondering how to meet Maia's needs while managing all of the daily tasks. Thanks in advance! And Praise God for no vomiting this evening!!

9 comments:

  1. Praying for the transition of everyone. So happy that little girl is back in her own bed.

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  2. Saying thank you prayers tonight and reminding you grown ups to take care of yourselves.

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  3. WOOHOOO!!! Congratulations! Praying for you all. :-)

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  4. Praise God, no vomiting, that is answered prayer. Good she is eating. I think you will see steady improvement with Maia now that she is home, it may be slow going, there may be set backs, but I believe she will improve and heal at home. Our little miracle girl, she is a living, breathing miracle in action. She is going to amaze us all. Our God is an awesome God and there is no limit to what He can do.
    I understand your feeling overwhelmed, I was very overwhelmed prior to my husband coming home, and afterwards for several months. Everything is so different from what it was before, and your heart aches for what is different now, and all the new medical needs to be taken care of now is scary. Access all the in home care and assistance that is available to you so that you and Mark are not doing everything on your own. It is so exhausting if you don't have help. Please access all the respite care that is available too, you need to take of yourselves the caregivers too, o.k.
    Enjoy having your girl home. Maybe after Matthew is home you could have a welcome home party for the 4 of you, that calls for a celebration! Happy Hugs to you all.
    Jacquelene L.
    Canada

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  5. I'm so glad you are home!!! You will figure it all out just don't worry about the house too much yet. Still praying for you!

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  6. Just prayed for you and your family. Prayed for God to give you the strength to get through this transition and to provide for all your needs. Maia is an absolutely beautiful little girl inside and out!

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  7. Thinking of you all this morning...prayers for your concerns being sent out to God...keep breathing and let yourself have a transition...you will get your sea legs as time passes!

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  8. I am so glad your transition to home went well. Feeling somewhat overwhelmed is to be expected. Try looking at your day in half day periods, or even hour long periods if half day is too long. Mostly, don't worry ahead...it doesn't help and uses energy needed elsewhere. (easier said than done...a skill to be learned)

    I am praying for comfort and peace for you in adjusting to your new normal. Praying for healing for Maia.

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  9. Welcome Home! So glad you are out of the hospital! Please keep updating. I want to know how everyone is doing.

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