Maia was cleared by the neurosurgeons to return to the rehab unit and after spending the morning and part of the afternoon waiting for the official order, we moved back to our old room around 2pm. Only partial therapy today because of the transfer. Unfortunately, she hasn't had PT since Saturday (VERY limited then) and I see the difference in her leg strength. OT went pretty well, Maia allowed her right hand to be moved more (she has been very resistant to any touch or manipulation of the hand). She is slowly getting used to being on her stomach and using her arms to push herself up. Mostly, she scoots herself backwards. We had a new speech therapist today and I really liked her. She took the time to sit and ask questions about Maia's previous speech... what her favorite words, sounds are, what kind of things she likes to do, what our usual home routine is. Had two of our favorite nurses today after getting back to rehab. Ashley came in and said, "I knew Maia was back because I could hear her all the way down the hall." :-)
She's having some problems with vomiting. Happened twice this afternoon. Once was shortly after taking one of her anti-seizure medications and the other was during dinner. My biggest concern is that this can be a sign of shunt malfunction. Maia has been pretty "burpy" over the past week or so. Hopefully, that's all it is. Please pray that this vomiting improves and her intake also increases. On the positive side, we did get approval to try some new foods. She's been on a pureed diet. Tried some Ge*ber graduate puffs and also a pre-packaged toddler meal to see if she could chew and tolerate the consistency. They both went well, although she was not thrilled about the taste of the meal - lol!
Thanks for your prayers - specifically for me today. I was really struggling last night and this morning. Just feeling exhausted, overwhelmed, and empty. This morning something happened over on the peds unit that had me so angry. I won't go into the details, but I'll just say that I wanted nothing more than to scream at a specific person "Come in here and look... see what the results are of you repeatedly telling us 'There's nothing to worry about. Everything is just fine.' " I know that somehow I will have to forgive all those involved, but right now I'm still very angry.
Anyway.... I digress. Although I am still not where I would like to be emotionally, I feel better than I did earlier today and I know that your prayers are the reason for this. So, thank you!
At this point, we're not sure if Maia's discharge remains scheduled for Friday or if this will change based on her most recent surgery and lack of therapy over the weekend. Hopefully, we'll know more tomorrow.