I did finally remember to ask a question that I've wondered about for a couple of weeks. Maia was talking up until the subdural drains were removed from her head. That was the last time we heard any words. I asked Dr. K if removing the drains could have caused Maia to lose her speech. He said that he didn't think so, that it was more likely related to the changes in cerebral pressure when the drains were removed. I have to admit, I'm somewhat cynical... but, why did she suddenly lose her ability to talk when things were supposed to be getting better?
We spent the afternoon together as a family which was nice. The kids both started to get cranky (in their own ways) and I was ready for a break, too. Matthew and I came home for the evening. We had some quality time, including watching Phineas and Ferb, eating corn muffins (his favorite), and putting on Spiderman tattos. He's asleep and I'm heading for bed shortly.
I do have a couple of specific prayer requests.
- Maia's food and fluid intake - For a girl that used to LOVE her food (remember the syrup drinking incident??), she just is not eating well. Fluids have always been a challenge and over the past couple of days, Maia is not getting enough fluid either. Please pray that this improves. Although the feeding tube (NJ) is out, I'm a little concerned that if her intake doesn't improve, docs may discuss need for a long term feeding tube.
- Therapy - as I posted about previously, please pray that Maia starts to make some significant progress with therapy now that the shunt has been repositioned and is hopefully working properly.
- Me - the adrenaline rush of the past month is wearing off and I'm feeling a bit beat up and worn down. Please pray that God will renew and refresh me for the journey ahead.