Quiet day and a couple of specific prayer requests

Our day was fairly uneventful. Maia and I had a slow start to the morning. She slept well until about 6am and woke up uncomfortable. I asked the nurse to give her some Tylenol which helped and Maia fell asleep for a little while longer. I woke her up a little after 8am and by the time we got morning cares and breakfast done, it was after 10am. Nana and Papa came to visit. Then, Mark and Matthew arrived as well. Nana and I took the kids to the play room. This wasn't an option before because Maia was on isolation (and therefore, Matthew couldn't go either). Matthew really enjoyed playing with all the toys. And Maia had fun knocking blocks over until the occupational therapist came to work with her. It's been a couple of days since this therapist has seen Maia. She noted that her involuntary movements seem to be slightly improved and I think she's right. Neurosurgery dropped by, nothing new from their perspective.

I did finally remember to ask a question that I've wondered about for a couple of weeks. Maia was talking up until the subdural drains were removed from her head. That was the last time we heard any words. I asked Dr. K if removing the drains could have caused Maia to lose her speech. He said that he didn't think so, that it was more likely related to the changes in cerebral pressure when the drains were removed. I have to admit, I'm somewhat cynical... but, why did she suddenly lose her ability to talk when things were supposed to be getting better?

We spent the afternoon together as a family which was nice. The kids both started to get cranky (in their own ways) and I was ready for a break, too. Matthew and I came home for the evening. We had some quality time, including watching Phineas and Ferb, eating corn muffins (his favorite), and putting on Spiderman tattos. He's asleep and I'm heading for bed shortly.

I do have a couple of specific prayer requests.

• Maia's food and fluid intake - For a girl that used to LOVE her food (remember the syrup drinking incident??), she just is not eating well. Fluids have always been a challenge and over the past couple of days, Maia is not getting enough fluid either. Please pray that this improves. Although the feeding tube (NJ) is out, I'm a little concerned that if her intake doesn't improve, docs may discuss need for a long term feeding tube. 
• Therapy - as I posted about previously, please pray that Maia starts to make some significant progress with therapy now that the shunt has been repositioned and is hopefully working properly. 
• Me - the adrenaline rush of the past month is wearing off and I'm feeling a bit beat up and worn down. Please pray that God will renew and refresh me for the journey ahead. 

Hope you all had a wonderful Sunday!!!