Fall 2013

Fall 2013

Saturday, June 16, 2012

Saturday update

I'm sorry I didn't get things updated this morning. I didn't sleep well last night and as soon as Mark arrived, I went home for a short nap.

Maia did well overnight. She was uncomfortable around 2am, but settled down with some oral pain medication. Woke up at about 6am, quiet and pretty content. Surgeons stopped in to see how she was doing. They did say that Maia's spinal fluid appeared clear which is how it's supposed to look. Before surgery, we had asked if they planned to send cultures of the fluid to make sure that there was no smoldering infection and were told yes. Haven't heard anything about results from that yet.

I have to admit, I was hoping for some miraculous improvement with last night's surgery, but for the most part Maia remains the same. I think she does have a bit more life in those beautiful gray eyes than she did a couple of days ago. She didn't eat breakfast or lunch, although I was able to get some nutritional supplement in her.

When I came back from my nap this afternoon, I got Maia up in a wheelchair and took her to the kids' playroom. She enjoyed knocking some blocks over. It's still hard to tell if her movements are purposeful or not, but either way - she giggled.

For some reason, Maia has been living with her fingers in her mouth today. She ate a decent dinner, but stuck two fingers in her mouth tonight and gagged - throwing up much of her supplement. UGH! The little white slippers came back out and onto her hands.

Matthew had a wonderful time at Grandpa Jerry and Grandmama's house. He got to play with Suki and burn off a lot of energy. It was so fun to talk to him tonight and hear about his visit.

Please pray that Maia shows improvement now that her shunt has been repositioned and that we begin to see bits and pieces of our girl back. And also pray for Matthew. We are reassuring him that he is every bit as important as Maia and we love him just as much!!


  1. Praying for all of you. Praying for healing and improvement and miracles for Maia. She is amazing, she has survived so much. I believe she will come through this and amaze us all. We have to keep on believing and holding onto hope and trusting God's plan, eventhough we can't see it now. Blind Faith are the words that just came to me. Praying for Matthew, this is so hard for him to understand. Covering you all in prayer. Hugs to you all.
    Jacquelene L.

  2. Praying for continued healing for Maia and praying for Matthew that he knows mom and dad are there for him too and how much he's loved!

  3. All my love to you guys. Thank you so much for this status update. Praying for stability and healing for Maia and grace and calm and God's presence for all of you. Wish there was more I could do but so honored to be praying for your beautiful family.

  4. First, Happy Father's Day to Mark.

    Glad to hear that Maia had some giggles yesterday. Hopefully you will hear more today. I also pray that you will see greater improvement now that Maia's shunt has been repositioned. Little glimpses of her personality would be so reassuring to you now. The fact that she is again recovering from a brain surgery is certain to have slowed her down a bit. Praying that she is into real a recovery phase and has no more setbacks!

    The picture of Matthew with his puppy makes me smile, so I am sure it really warms your hearts. A boy and his dog...best buddies.


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