Miss Maia was indeed busy today. We started out the morning with breakfast. I ordered French toast and eggs (both pureed, if you can imagine) since those are some of Maia's favorite things. And here is the sweet girl up in her supportive chair to eat.
She managed a couple of bites of egg and about 1/4 of her french toast (mixed with lots of butter and syrup). I was impressed. Still not a lot of interest, but she didn't fight eating either and actually opened her mouth with the french toast.
After breakfast, Maia had a short bath to soak that poor bottom which is really suffering from the loose stools. Today was the last day for antibiotics so hope that will help alleviate the diarrhea. She also got her scalp gently cleaned. Maia's nurse suggested getting her dressed and after that, I put her in her stroller and we took a short trip to visit the ICU nurses. Then, she had PT and OT.
I left her in daddy's capable hands while Matthew and I went to get our hair cut. Mine was LONG overdue so it is nice to be able to see past my bangs again - lol! Dropped Matthew off with Nana and Papa so that I could do a little birthday shopping for a very handsome boy who will be five tomorrow ;-) I think he will like the presents that are coming his way.
Headed back to the hospital with some goodies for the ICU staff in appreciation for their great care of Maia (who had not napped at all this afternoon). Then a friend of mine dropped off a meal for us (thank you so much Emily!). I got to spend a little time with Maia before Matthew and I had dinner with my parents. She was less excited about dinner than she was about breakfast - can't say I blame her as the pureed pork with apples didn't impress me either. ;-). She did eat about 1/3 of her pureed pears and a couple of bites of ice cream.
Mark is spending the night with her and although it's easier being at home than last time, I still am struggling. There, I am focused on Maia. I don't have time to stop and think about the situation. At home, it's harder. My mind starts heading towards overdrive and I have to stop and ask God for His peace. I think of Matthew 6:27 - "Who of you by worrying can add a single hour to his life?" It isn't so much worry that builds up. Right now, it feels more like grief and heartache. My precious child is suffering and I can do very little to change that. Somehow, I have to remember to rest in God and draw strength from Him.