Fall 2013

Fall 2013

Monday, June 4, 2012

New home

Miss Maia had some very special visitors today. A friend from church came this morning and brought her an adorable kitty that meows, purrs, and walks. So appropriate since Maia LOVES making kitty sounds and pretending to be a cat. This afternoon, her teachers from school came to visit. It meant so much to me that they visited. They assured me that they are saving Maia's place in the second summer school session (she will miss the first) and can't wait to see her back in the fall. I know that I am somewhat a lot biased, but our sweet girl really does bring joy to a room. She charms everyone with her smiles and giggles. And she LOVES going to school. Mrs. Sandy, Mrs. Sue, and Mrs. MaryJane have a lot to do with that. Their concern for Maia and commitment to her is apparent! Thank you ladies (and thanks to all of the ECSE staff who teach my girl)!

We moved to Miss Maia's new "home" this afternoon. Again, there was a lot of commotion with the transfer so it became pretty overwhelming for her. She just wasn't calming down well so I finally put her in the stroller and off we went. Walking for about 30 minutes did the trick so when we came back to the room, I put on one of her favorite movies "Cars" and she was calm.

Dinner went pretty well. Maia enjoyed the mystery meat - lol! It was listed as pureed chicken with chicken gravy, but definitely had dark gravy on it. Not sure about the meat. But whatever it was, she ate about 2/3. Seems like protein is probably the most important thing to get in her system right now so I was glad that she was happy to eat it. A few bites of her other foods as well.

Tomorrow will start the more intensive regimen. She will have about an hour each of physical and occupational therapy daily. I can't remember if speech therapy starts tomorrow or not, but know that is in the plan, too. I was asked today what my goals would be for Maia during this stay. I didn't know how to answer that and basically said the same to the therapist. She told me that their goal is to try to get close to Maia's baseline before discharge. I want to believe that, but it seems SO far away right now.

Please pray for Mark. He is home with a stomach bug. Tomorrow morning, he's scheduled for his root canal. Go figure.

I'm going to leave Maia in Nana's capable hands for a little while in the morning. Matthew has a speech therapy appointment at the same time as Mark's dentist appointment.

Think we should try to squeeze in a little more? ;-)

I am wiped out, so am going to try to get some sleep. Praying for a peaceful night for my girl. I'll try to take some pictures tomorrow - this is a pretty nice room, I might want to move in - lol!


  1. Thoughts and prayers conitnue to be with you all! Hoping that everyone gets a good nights rest. Thank you for the updates! Love ya lots! ~ amy

  2. Maia is in the right place with the right help. I know how hard it can be to imagine her back at her baseline, and it seems at times that the Maia you know so well is not there right now. She is. Take heart and try not to feel scared. God has this....and Maia is healing. She has lots of work to do now. You know her likes and dislikes, and you can engage her interest even passively when she rests. Music, storybooks she likes, and videos can help her brain rewire. The staff there can help her body to heal and to work well again. My heart is with you, my prayers are for you. I know your fears....I have walked a similar path.

  3. Thanks so much for continuing to update us all. I read and pray everyday. I'm so glad she is able to rehab there at the hospital. Praying for you all!

  4. Praying, praying, praying here! HEALING in every way, in the name of Jesus!

  5. Glad to hear of a successful move to rehab. They will keep her very busy. She will progress, she will amaze you. Praying for Mark especially. I hope you get a good night's sleep. One day at a time. Hold onto hope.
    Hugs to you all.
    Jacquelene L.

  6. Hang in there!! Everyday we all think of you guys and not a day goes by that we don't pray for you all! *HUGS*~Cindy

  7. Much love to you as this day begins in Maia's new treatment program...sending love light and peace...so glad she is going to get some intensive work...XOXO Jane


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