We're starting to see a little more of our girl again. Maia isn't back to baseline, but she was better today. Ate a hard boiled egg and some yogurt for breakfast, then had half of a pear a little later. Unfortunately, we're still having problems in the pooping department. We've tried prunes, prune juice but she doesn't like them at all. Raw veggies... not so much. If any one has any dietary suggestions, I'd love to hear them. The spina bifida complicates matters because of the lack of tone in Maia's colon.
Anyway... she was more active today - still not interested in the chasing around the house that she and I were doing last week, but she showed interest in playing again. We are very thankful for the improvement. Again, thanks for your continued prayers!
Saw the opthalmologist this afternoon. Maia's vision is good in both eyes, but she uses them each independently. When she uses one, the other basically shuts off and she doesn't see out of it. Her right eye is stronger than her left so we will start patching tomorrow. She is to wear the patch for 4-6 hours/day while awake until she begins to use both eyes equally. We will go back to see the ophthalmologist in 6 weeks and she will be scheduled for surgery to correct her strabismus at that time. I'm pleased with the person we saw because he specializes in the type of surgery that Maia requires. He told us that Maia's convergent gaze problems are common in children with hydrocephaly and is very knowledgeable about this issue.
Since we started the process to bring Maia home, I have been praying that God will put the right people in our path to provide her with the best possible care. With the appointments we've had so far, I have no doubts that God is answering these prayers and thankful for these physicians who are committed to helping our girl be the best she can be.
We stopped at Culvers after today's appointments. Maia was quite happy with her corn dog and ate the whole thing. Frozen custard? Nope - not interested. I think it's too cold for her - given her reaction to cold foods, I'm guessing she must be used to eating things are room temperature. She doesn't know what she's missing out on!
Word for the day: "Up." As we climb "up" the stairs, Maia very clearly said "Up" today. When we we were walking in to the house from the garage, I said "Maia's dom" (dom is Russian for house) and she said "Dah" which is Russian for "yes." It is so fun to see the progress and learning!
I look at our precious girl and am so thankful to God for blessing us with her. Mark and I enjoyed our life before Maia came home - we didn't feel that we were missing out on anything. But now... she has definitely added something wonderful to our world!