As I mentioned in my last post, Miss Maia had a busy Monday with appointments. In the morning, she was seen by the Neurology NP in the Spina Bifida Clinic. This was the woman who actually "found" Maia's shunt malfunction (which had been present for a year, but no one told us) back in February. This was the first time we had seen her since then. She was very patient with us as we asked a lot of questions. One of the things I wanted to know was if an MRI or EEG would show us how Maia's brain has been affected by the infection and/or seizures. Short answer is that an MRI might show this, an EEG would not. And bottom line is that getting those answers would not change anything in how Maia's recovery or treatment is approached. So... is it worth the stress and anxiety it would like cause our sweet girl? Probably not. As someone who likes to have all the answers, this is a difficult situation for me. I am praying for God to give me acceptance and reassurance that it doesn't really matter.
In the afternoon, Maia saw our wonderful Dr. S who is the Physical Medicine and Rehab specialist in the Spina Bifida Clinic. She is pleased with how Maia is doing from a gross motor standpoint. She has no answers (nor does anyone) about why Maia lost her speech. Dr. S is "hopeful" that she will gain it back, but is also quite cautious in saying that Maia may not regain that ability. We are praying daily that God gives Maia her voice back. It is one of the things we miss most. With Maia's brain injury, it is also possible that she has developed some autonomic dysfunction in her ability to regulate body temperature. At times, she becomes quite flushed and other times, her hands and legs/feet are almost purple from cold. No specific intervention at this point, more just supportive things to keep her warm or cool.
Today, I took Maia to her therapy appointments. Miss Maia surprised the PT and me. She was cruising by herself down the hall, holding on to the railing when she saw something across the hall that was pretty motivating to her. Next thing we knew, Little Miss Thing WALKED ALL BY HERSELF without holding on to anything for about 10 feet! WOOHOO!!
And that's our excitement for the day.