Things seemed to be working correctly for a couple of days. But now, we have noticed that his urine is not exiting from the right area. Mark contacted the surgeon and we were told that there is sometimes leakage from the suture sites and it should stop as the holes heal. Even if this was not the case, there is no way they would be able to do further repair for at least three months because right now, it would be like sewing through tissue paper. It's been a few days since Mark talked with the doctor and we are pretty sure that it is not leakage from the suture sites. The thought of another surgery is difficult. If you could see the fear on Matthew's face and hear those cries, it would break your heart. I'm crying now just thinking about what he must have experienced in his life to have this response.
Then on Tuesday, Matthew saw the ophthalmologist. We really had no concerns going in. He seemed to be using both eyes well and seeing clearly. The kid can point out tiny planes in the sky. We expected a routine visit with a "see you once a year" message. But, we didn't get that. Matthew's brain has shut off the function of his left eye. Probably as a result of his head injury. According to the doctor, it is as if this eye is patched. We will begin patching of his right eye (the good one) to see if his brain can be forced to change. Sometimes it works, sometimes the brain is not able to make this adjustment and resume function. I've ordered some fun patches (just like I did for Maia) and we will begin the patching as soon as they arrive.
So... would you send some prayers up for our boy? Specifically,
- Resolution of the urinary issues. That Matthew's body will heal all of the incision sites and he will begin urinating from just one location (the correct one!) - the end of his urethra.
- As far as the eye is concerned, there are a couple of requests.
- First, that Matthew will be able to tolerate the patching without difficulty. We were told that this can be very traumatic in the beginning because it can essentially take sight away from the child. Pray that God will give Matthew understanding and peace of why this is happening.
- Second, that Matthew's left eye will begin to function perfectly very quickly and that there will be no need for further intervention after about 6 weeks of patching.
Maia... hmmm, not so much! She would rather be mom's helper.
Praying for Matthew's healing and that he does well with the eye patch!
ReplyDeletePraying for your precious boy :(
ReplyDeleteAww. Small price to pay, getting hosed off, for all the trauma he's been through. I actually like being in the hospital. I get all the attention that I want, and more. It's after the anesthesia wears off that it's not so much fun. I've prayed for him. Expect good things.
ReplyDeleteWe are praying for Matthew to be perfectly healed and that he tolerates the eye patch well, and that his brain and eye start to work in that area. We are also praying for you guys as you go through these issues with him. It's hard on momma's and daddy's....and sisters!
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