Last week really threw me for a loop. I usually work on Wednesdays, but had taken the day off so that I could be home for Halloween stuff with the kids.
Maia had therapy in the afternoon and so after that was done, we headed to Nana and Papa's to get ready for trick-or-treating. She was already tired out from all the hard work of therapy. Matthew and Mark arrived after Matthew was done with school. We ended up hanging out with Nana and Papa for a couple of hours. Then, I had a visitation to attend. One of my dearest friends' mother died. I think she is the first one of my friends to lose a parent and it was a bit of a reality check for me. Anyway... after the visitation, we stopped at our friends Ken and Jeanne's house so the kids could trick-or-treat. By the time we got home, it was almost 7:30pm and Maia was wiped out so Mark put her to bed. Matthew and I headed out to see how much candy he could accumulate - lol! He made out pretty good given that we were only out for 45 minutes.
When I went back to work on Thursday, I kept thinking it was Wednesday and by the time I realized I missed Thankful Thursday, it was Friday morning. Work was crazy and I was ready for a break by the time 5:30pm came. The kids were tired from some late nights and Mark hadn't been sleeping well, so we were all ready for bed early. Enjoyed our usual Friday night pizza and movie. We had a yippee moment. Maia fed herself the small pieces of pizza that I cut up for her for the first time!! Now admittedly, she would have shoved them in her mouth one after the other if I had let her, but still... it's progress. I got her ready for bed and she and I laid down to cuddle while Mark and Matthew finished the movie. They joined Maia and me for a little family cuddle time. Next thing I knew, everyone was sound asleep in our bed - at the "late" hour of 9:15pm. We are indeed party animals - lol!!
Saturday was busy baking pies for our church bazaar and pie social. Mark worked on the motor home. He has been trying to repair a rotten wall. Unfortunately, he has found that the whole roof is rotten. Still going to try to salvage it so that we can use it at the cabin because that is the only way we have to shower since there is no running water. That evening, my friend Del came over and watched the kids so that Mark and I could have a date night. Again... we ran out of steam early and came home to bed. Kind of pitiful, really - lol!
Sunday, we enjoyed church. We missed last week because we were out of town and it seemed like forever since we had been there. Unfortunately, I totally forgot that it was Orphan Sunday until today. Hopefully, next year we will be able to do something at our church to share the plight of orphans around the world. It resonates deeply within me even though I don't shout about it like I probably should. Later in the afternoon, my god daughter Rachel interviewed me for her career class. It was fun to answer her questions and spend a little time actually thinking about different aspects of my job. I am so thankful God gave me the opportunity to serve the elderly, what a huge blessing!
And today back to work. Maia had appointments all day, literally! She started at 7am and was scheduled through 4pm. Fortunately, the 4pm appointment was able to squeeze in this morning, so she actually finished up around 4pm instead of 5p. Blood work and lots of urology testing this morning, as well as meeting with a different physical therapist. Maia's urology tests show that there has been no worsening of the reflux of urine back in to her kidneys. While we were hoping that this was improved, at least it is not worse. Her urine is currently free of bacteria and the Urologist said that the preventive antibiotic can be stopped for now. This is good news because I do worry about Maia becoming resistant to antibiotics. We've been concerned because she continues to have leakage between her scheduled catheterization. Dr. K recommended increasing the medication which softens her bladder walls, allowing it to hold more urine. I'm not excited about that due to side effects, but it is our only option. If things do not improve, we will have to consider surgery to enlarge Maia's bladder. Please pray that the medication works, we don't want to subject our sweet girl to another surgery unless it is absolutely necessary. So, the urology appointment was after lunch and following that was the appointment with our favorite Dr. S. Maia was not walking at the time of her last visit, so she was thrilled to see that progress. Dr. S was also very happy that Maia is vocalizing more sounds even though "no" is the only word we are hearing. Mark did ask about the possibility of starting fish oil for Maia. There are some studies showing that this may be beneficial in patients who have suffered brain injuries. And so even though Dr. S says it hasn't been confirmed, she is receptive to us trying this supplement for Maia. I'm excited about that!
That's most of what's happening in our world. Seems like we are so busy with appointments lately. I never imagined that we would be on the go so much when the kids were this young. I have no delusions that it will improve with time, though. My only hope is that somehow, I can become more organized and adept at dealing with all the chaos. Yep... I know, hope springs eternal!