Maia had an appointment at the Spina Bifida Clinic yesterday. I had to work so Mark took her. They met with the physical therapist, occupational therapist, social worker, and doctor. All indicated that Maia is doing very well.
At her visit in January, there was some discussion about whether to brace her ankles because they roll inward. Unfortunately, they haven't improved since January. But, they haven't worsened either. So for now... we are going to just monitor things. The concern with applying braces is that it may make her ankles actually weaker since they don't have to work as hard at maintaining alignment. She is not having any difficulties with walking itself (other than her balance and weakness with steps) so I am not in a huge hurry to put the braces on. No formal physical therapy was recommended right now. From the occupational therapist, we need to work a little more agressively on teaching Maia to dress and undress herself. She is able to undress her bottom half, although she would much prefer to have this done for her. Taking the tops off is a little more difficult. And we've got quite a ways to go on getting dressed. But, it will come with time.
The social worker was impressed with Maia's adjustment so far and the physician had no concerns, but was able to give us some suggestions for the constipation issue so hoping this will help. Routine follow up in 3-6 months!
Tomorrow is Maia's eye surgery. Report time is 8:15am. I am hoping we will be home by early afternoon. If I remember correctly, the surgery will take anywhere between 30 minutes and 2 hours. Please pray for wisdom on the part of the surgeon, that the staff caring for Maia will have compassion and understanding for our girl, and peace for Mark and me. I trust that the outcome is in God's control and it is not a major surgery. But, I still wish that Maia didn't have to go through this. Thanks in advance for all of your encouragement and support!
Will update you tomorrow.