Maia had her EEG on Tuesday morning. Thankfully, they were able to just put the cap on and attach leads to that as opposed to gluing all the leads to her scalp. She was able to sleep for about 20 minutes so they got a good reading. We met with the neuro NP in the afternoon to get results. On the positive side, there were no "spikes and waves." But, that still leaves us with the question of why Maia has lost her speech. The EEG does continue to show frequent abnormal brain activity which predisposes her to seizures - both partial and generalized. However, there was no evidence of seizure activity on the EEG. The results were reviewed by an epileptologist who feels that Maia's brain may just still be recovering from it's severe injury and we need to allow more time. So... We don't really have any more answers, other than to say what is not causing the lack of speech. My daily prayers are that God will give Maia back her words.
As far as my thanks, well it's pretty unimaginative today but I am thankful nonetheless.
- Thankful for the opportunity to have lunch with Erica, a church friend, who adopted her son Timothy from the same detsky dom as our kiddos. Was nice to share time together.
- Thankful for dinner with my mom on Tuesday evening and then hearing Rabbi Harold Kushner share his perspective on suffering and the book of Job.
- Thankful that we had a calm evening without meltdowns.
- Thankful for God's promise to be with us in the midst of whatever we are dealing with. He sustains me.
- Thankful for opportunities to make a difference in the lives of my patients and their families.
What's on your list?
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