tag:blogger.com,1999:blog-2630658384945247344.post6597264765020363144..comments2023-10-17T11:02:05.983-05:00Comments on Trusting His Promise: Thoughts and another dayMark and Melaniehttp://www.blogger.com/profile/01170151322614136789noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-2630658384945247344.post-29106473876032775912012-06-10T07:56:21.467-05:002012-06-10T07:56:21.467-05:00Your strong little girl is showing how strong she ...Your strong little girl is showing how strong she can be in the only way possible right now...by staying awake. Would be nice if she could find a new way to show that strength, huh? Possibly she knows much changes for her when she is or has been asleeep and she fears that? Just a thought.<br /><br />Isn't it strange how after living the hospital life for so long....a life you as a nurse thought you knew...you long for the little things from your REAL life. Even the things that used to annoy you start looking pretty good.<br /><br />Praying you see measurable changes today. May Miss Maia feel hungry enough to eat, rested enough to participate in therapy, and calm enough to sleep. Praying Matthew feels your love, and shows you how much he loves you because right now Maia can't, and you both need that reassurance. Praying Melanie and Mark can get some rest. Praying your fatigue and concern and valid fears don't get in the way of your love for each other. Praying for you as a family.Pathttps://www.blogger.com/profile/13225242385789578243noreply@blogger.comtag:blogger.com,1999:blog-2630658384945247344.post-83309828223786531422012-06-10T01:17:55.950-05:002012-06-10T01:17:55.950-05:00Hi Melanie. With Maia's ot and pt schedule wou...Hi Melanie. With Maia's ot and pt schedule would it be possible to do pt in the morning and ot in the afternoon instead of doing one session of each morning and afternoon. Perhaps with her sleep issues doing both morning and afternoon is too much. Also I wonder is she afraid to fall asleep. I know after my husband's drowning accident our son noticed he was mouthing the words "help me, help me", as he was falling asleep. So I think she might be afraid to fall asleep, maybe she is afraid of another seizure or just not waking up. Just my thoughts, your the mom and you know her best.<br />I was also wondering if maybe the Grandparents could give you and hubby and hour or two off to have some time alone togethor, I think you really need it. Maybe Matthew could help them entertain Maia, it would be something important he could help do. Covering you all in prayer and believing in miracles. Praying she will be able to sleep and do her all her therapies in the name of our Lord Jesus Christ.<br />Hugs to all of you.<br />Jacquelene L.<br />CanadaAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-2630658384945247344.post-80763141573703521482012-06-09T22:29:56.267-05:002012-06-09T22:29:56.267-05:00Novelty is wearing off I BET! 25 days in the hosp...Novelty is wearing off I BET! 25 days in the hospital is enough for anyone! You are so dedicated and Maia is getting through this. Hopefully the therapists will work to find a schedule that works for Maia. She sounds so darn pooped through all of this. I can only imagine how exhausting her healing is inside her body.<br /><br />God is bigger than all of this. Love is bigger than the fear. Loving thoughts to all of you and a big, long distance hug to you as this Saturday ends.jabremanhttps://www.blogger.com/profile/17799893078501182322noreply@blogger.com